Gimpy Media

Tryion in A Song of Ice and Fire

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Those of you who are show watchers only may be a little confused.   You are probably saying to yourself “Peter Dinklage isn’t disabled.  He’s just little.”  This is true, but book Tryion is much more impaired.   As a point of view character we witness his pain both physically and emotionally.   He is described as a misshapen dwarf with one red eye and one black who waddles instead of walking.  After his nose is cut off in battle he becomes even more grotesque.   He is often referred to as a monster and unfairly compared to his beautiful,  perfect siblings.

He is in pain most of the time and even made it a condition of his contract with his mistress that she must rub his aching legs after a day of riding.   Despite his physical shortcomings, he has a keen mind and pushes himself to complete the grueling journey so he can see the wall with his own eyes.  His sadness and anger at his situation is always present in his mind, but he only shows the world his witty, nonchalant attitude.   For example,  his siblings were discussing Bran falling from a tower and breaking his back.  His brother says that someone should mercy kill the child because he would live a horrible grotesque existence.  Tryiion answers “speaking for the grotesque,  I hope the boy lives.  Death is so terribly final, while life is full of possibilities”.  He refers to the angry and bitter Jon Snow as simply “Bastard”.  He says “never forget what you are.   The world will not.  Wear it like honor and it can never be used to hurt you”.   He also explains his duty to his house as “I have a realistic grasp of my own strengths and weaknesses. My mind is my weapon. My brother has his sword, King Robert has his warhammer, and I have my mind… and a mind needs books as a sword needs a whetstone, if it is to keep its edge.”

He has proven himself as Hand of the King and even led troops when the young king ran off to his mommy.  So does this mean that Tryion is the happy,  well adjusted and successful gimpy role model that we have been craving?  Not exactly.   Just like now, wealthy people who are disabled in Westeros live a much better quality of life,  but he is actually more crippled by his emotional pain than his physical shortcomings.   Being told over and over again since birth that he is a monster and no one wants him has warped his mind.  If you hear something often enough you start to believe it even if you know intellectually that it isn’t true.  His family even blamed him for killing his mother in childbirth.   Even though he parties hard, has power and money,  he is incredibly lonely on the inside.   I think he is the perfect example of why it is important to surround yourself with people who love and respect you as you are.  As for the rest of the world, never give them the power to hurt you with hateful words.

Hypermobility in Children

https://tranquilbabiesny.wordpress.com/2017/04/15/hypermobility-and-proprioception-why-loose-joints-create-sensory-processing-problems-for-children/

N has my genetic disorder, Marfan Syndrome with Hypermobility. That means that our joints are so loose that they bend in ways that they shouldn’t. For example, N’s knees bend backwards when he is standing. Unfortunately, my hypermobility has progressed to the point that I have several dislocations a day. I can reduce them on my own most of the time, but rarely I need a dr to do it. I am really trying to help him stay healthy for as long as possible.

Hypermobility is not uncommon in younger children even if they are healthy. This article may be helpful to see if your child is a little hypermoblie.

Gizmopal 2 Review

This is not a sponsored post. We have really enjoyed using N’s and I just wanted to share our experience. It has given us a wonderful sense of security that is worth more than gold.

I suppose I should start with a little background on N. He was diagnosed with classic autism before ASD was redefined. I’m not trying to get into a “my kid is more autistic than your kid” contest. I just wanted to illustrate his level of disability. He is verbal with people he knows well, but even then he has a very hard time reading a situation and communicating what is going on. For example, he is convinced that Jesus is a zombie because He rose from the dead and no one can convince him otherwise. It’s adorable, but he would really be at a disadvantage if he needed help.

When we decided to send him to school part time, I really worried that he might get lost and not be able to ask a stranger or even a police officer for help. It’s a very real threat that often ends badly. This study shows that almost half of all children with ASD wander regardless of where they are.

https://www.autismspeaks.org/science/science-news/study-confirms-autism-wandering-common-scary

We both wear medic alert bracelets for our genetic disorder, but it is so rare that it is more likely to confuse EMS rather than help. I looked into a GPS device so we could at least track him if he wandered off. Some were crazy expensive and some were very unreliable according to other reviews. I had a hard time finding something that would work for us and still be durable enough for a nine year old boy.

As luck would have it, dropping my phone in the tub was the best thing I ever did. When we were at the Verizon store, our friendly sales associate immediately offered to show us the new Gizmopal. He has worked with us before so he knew about N’s condition. It’s going to sound like I am exaggerating, but it really is this awesome and the perfect solution.

Some of the features include:

  • Program up to 4 numbers that can be called by the device. Other numbers can’t be dialed.
  • Two way calling so I can call him and it will automatically pick up after 10 seconds
  • GPS tracker that can be checked in real time through the Gizmohub app
  • The app is super easy to use. I am not very tech savvy, but I was able to program his numbers and set location boundaries in a couple of minutes.
  • It’s very reasonably priced at $80 with a contract.
  • The best part is how kid friendly it is. In addition to making phone calls, the buttons make cool noises and tell time. Of course, it is comfortable, durable and waterproof.

Here is a link to more information and a store locator where you can pick up one of your own.

https://www.verizonwireless.com/simulator/LG/gizmo_pal_2/embedded.html

#Disability Discrimination means Son is removed from Home?

http://wp.me/p27z4t-2fg

This is reblogged from another awesome site that you should check out. It is a constant fear of mine that N will be taken away because of my disability. I constantly have people say that I am selfish to have him because I can’t possibly be as good of a mom as an AB person. Asking me how I do certain things from a wheelchair is one thing, but assuming that everyone hates the cripples, even their own kids, is just plain wrong. Why is it still happening? This isn’t the stone age when I would have to wrestle a bear to feed my kid. Love goes a long way in parenting. You will find a way to take care of those you love.