Hypermobility in Children

https://tranquilbabiesny.wordpress.com/2017/04/15/hypermobility-and-proprioception-why-loose-joints-create-sensory-processing-problems-for-children/

N has my genetic disorder, Marfan Syndrome with Hypermobility. That means that our joints are so loose that they bend in ways that they shouldn’t. For example, N’s knees bend backwards when he is standing. Unfortunately, my hypermobility has progressed to the point that I have several dislocations a day. I can reduce them on my own most of the time, but rarely I need a dr to do it. I am really trying to help him stay healthy for as long as possible.

Hypermobility is not uncommon in younger children even if they are healthy. This article may be helpful to see if your child is a little hypermoblie.

Autism myths I think are b s!

http://wp.me/p92Buh-6j

It’s like she read my mind. Not only are these myths annoying, they are actually quite harmful. Children are dying of preventable diseases because parents are too scared to vaccinate them. It’s also really ridiculous that I have had to tell umpteen people that my son doesn’t do party tricks like Rainman. One guy actually dropped pencils on the floor for him to count with his autism.

Holiday Advice for Special Needs Children

Celebrating can be an exciting part of growing up. I still feel nostalgic whenever I watch “A Christmas Story” or smell gingerbread. But for a kid with special needs holidays can be overwhelming or inaccessible.

I want to start a series on tips and tricks for modifying the normal traditions so they can be sensory friendly and accessible for everyone. Halloween is only a couple of weeks away and I want share some of the things that we do so N can enjoy the holiday, too.

Sensory Friendly Costume Ideas

Like many kids on the spectrum, N has problems finding normal clothes that feel comfortable to him. He currently wears ladies leggings because they are too big on him and fit like sleep pants. (Believe it or not, the school suspended him for “crossdressing” the first time he wore them. It’s a weird story of ignorance and foolishness that will get its own blog post later on.)

Because of his sensory issues, the costumes at Party City with hot polyester with itchy seams are out of the question. I like to sew, but most busy parents don’t have the time. Don’t worry — I have a few ideas that require little to no sewing.

  • Try some PJ’s. Onsies are very popular right now and could be used as a head to toe costume. Even Walmart has superhero PJ’s with detachable capes.
  • Sweatsuits are super comfy and can be decorated in minutes. You could add a cape and use fabric paint to make the logo for a superman costume. Sew or glue pompoms to the top and decorate the pants to create a gumball machine outfit. Here is a link to some great ideas that can be thrown together with a little fabric glue and paint.

http://www.cutegirlshairstyles.com/lifestyle/10-diy-food-halloween-costumes-kamri-noel/

  • Try masks instead of face paint or just go without. Some kids can stand the feel of body paint, but like masks. Some can’t do either so the costumes themselves just have to do.
  • Try wearing normal clothes underneath a costume. Some little ones are fine with the outerwear if the fabric that touches their skin is soft.

Wheelchair costumes

These can be lots of fun because you can turn the wheelchair into a prop and it’s great to have a “vehicle” to ride on instead of walking around the neighborhood. I usually end up with my own kid and a couple of hitchhikers before the night is over.

  • Kids in powerchairs have an advantage because the only part that they need access to is the joystick. Cardboard or foamboard can be painted to look like the Batmobile or Cinderella’s carriage and strapped to the sides. There are so many ideas on Pinterest, but I really like this site:

http://www.coolest-homemade-costumes.com/tag/wheelchair/

  • Manual wheelchairs can be a little tricky because you need to have access to the wheels. You can still decorate the back or the front as long as it doesn’t interfere with pushing the wheels.
  • I usually use a manual chair, but I like to rent a powerchair or a scooter for the week of Halloween. It allows me to move around easier plus the weight limit is much higher. Last year I was a train conductor and I added wheels to 55 gallon totes so I could attach them as train cars. I had a baby in my lap, N plus two other kids on the back and hubby on the platform attachment. It’s not just the disabled children that get tired of walking; the little ones and lazy husbands need a break, too.

Next time, let’s tackle candy and other treats.